03/20/09

Thursday at school Dustin had another grand mal seizure. He only remembers falling asleep in English class. What really happened though...he didn' t fall asleep in English Class. His teacher did say that at the end of class he looked a little 'dazed' and out of it. He then made it to his fourth hour class and asked the teacher if he could go to the nurse. She said he definitely looked like he needed to go to the nurse. He had a friend walk him down. He only made it to the end of the hall and slumped against the lockers and the other kid ran to get the nurse. The nurse now has the ativan which she was able to give him right away and this was enough to get him out of it. My mom came and called the neurologist from Michigan City while she was at the school. He told her to take him home and let him sleep it off and he also added that his video eeg (which IUPUI is waiting on to decide what they are going to do) was lost at St. Anthony's. The good news is that with the ativan Dustin was still able to function the rest of the day and never even needed to go to sleep. He went back to school today. The bad news would be the lost video eeg. The president of the hospital called my mom and assured her that they are still looking for this and it is the first time they have lost one of these. Apparently, the test was filed incorrectly and then deleted. She was assured that they will continue to look for it and they will do another one free of charge. Dustin is not happy about this. It involves being hooked up to a million little probes on his head and being video taped in bed until he has a seizure. Last time he had one within 36 hours, but if necessary they would keep him up to 6 days! It's not fun, of course, Dustin doesn't really remember the first one so you 'd think it would be okay to do it again. He doesn't think that's funny. He looked up a lawyers number and talked to the business law class today at school to see if he had a case! When we were at IUPUI the doctors weren't sure that they weren't going to have to do another video eeg anyway, so doing another one there won't be the end of the world. I went with my mom to his parent teacher conferences. Most of his teachers have noticed a definite change in him. They said he is much more quiet and subdued. His art teacher asked him to paint a mural on the wall by one of the drinking fountains. She assured my mom the she wants him to do this even if it doesn't get done till his senior year. He hasn't tried to draw anything in his art class, but he is trying to come up with ideas to paint. This is awesome when compared to a week ago when he took all of his art work out of his room and told us he didn't want it in his life anymore. It must be scary to him, but little steps like these are a blessing for us to see. His teachers were all so supportive and he seems to be well liked at school! Lately his sense of humor seems to be the same too...last night he had us all cracking up!

Please pray for:

Dustin's memory to return as God wills it to

patience and acceptance for all of us as we adjust to each day that brings something else in to our lives

That the medicine he is taking continue to work and if he does have another seizure that they be as short and the effects as mild as the last one

God's hand be over the search for the missing eeg

Wisdom for Dustin's doctors and my parents in the decisions they have to make

Guidance for Dustin at school because he has missed so much and no one is really sure what we should do as far as reteaching and trying to get him back into his classwork

patience and peace for Dustin as he goes through each day with his friends, school, and overwhelming but loving family!