Yesterday Dustin had his first appointment at IU. The doctor had my mom and myself review the past seizures that he has had and explain what has happened with each one as best we could. Since Dustin obviously couldn't remember any of them he had to rely mainly on us. Dustin usually wouldn't remember the time leading up to the seizures or after them anyway. He did tell us he is concerned that the seizures when described do not seem like your 'typical' seizure and he is concerned with the quantity of seizures over such a short period of time. He seems to want to find out why this is happening. It really was such a relief to hear a doctor say that. Of course we as his family want to know why, but it's reassuring to have a medical professional want the same thing. We weren't able to bring a copy of the video EEG with us and the doctor couldn't tell us too much without reviewing this. So as soon as my mom is able to she will mail him a copy. He will review it and if it is clear to him what is happening in the EEG then they will use this one if anything is unclear then Dustin will have to have another one. Please, pray that this one is clear. He will do this again if he has to, but it's a long process. The doctor did say that he could not say at this time that Dustin will need brain surgery. That was a big relief for Dustin, obviously. It did make him nervous that he had to mention it so many time while we were there, though. He did several reflex tests with him, did some quick memory tests and watched him walk and decided that there most likely was no brain damage. This is good because the doctor said since there doesn't seem to be any kind of other brain damage that the long term memories should come back. I do notice him doing little things that he probably doesn't pick up on. He called Ophelia, "O". He obviously could have picked up on this during the past couple of weeks, but he did it so automatically it makes me a little hopeful that some things will just return to him like this. The doctor really couldn't tell us too much without the video EEG so now we wait for it to be copied, mailed and reviewed. At that time the doctor will contact my mom to set up another appointment. I would like to ask you to pray that this happens quickly, but instead pray that it happens as God wills it to. Pray that the doctors take the time they need and that things are done wisely. Keep praying for Dustin at school. I think it's still hard, but he's adjusting well. He is pretty tired at night when he comes home, but he is on a lot of meds that wipe him out too. The doctor at IU did say that the amount of meds he is taking is not harmful and he should continue with them until something else is decided. Pray for the people that will influence him in his daily life. He is turning more to friends than his family and that means friends are who he will be learning everything from. As his family we would love it if he would come to us with everything, but we must remember that he is a 16 year old boy and feels most comfortable with his peers. He also is willing to meet with a friend of mine to talk about why God allows things like this to happen to us. Please pray for an open heart for Dustin and wisdom and guidance for the friend who will be explaining this. Thank you so much for all of your prayers so far. I can say that I've seen answered prayers in the last two weeks. Dustin hasn't had another grand mal seizure. That didn't seem very likely when we had talked with his neurologist two weeks ago today. He is back in school and things are slowly returning to a new normal for all of us...
Romans 8:25
But if we look forward to something we don't have yet, we must wait patiently and confidently.
1 Peter 4:12-13
Dear friends, don't be surprised at the fiery trials you are going through, as if something strange were happening to you. Instead, be very glad-because these trials will make you partners with Christ in his suffering, and afterward you will have the wonderful joy of sharing in his glory when it is displayed to all the world.
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